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Sickle Cell Patient is a registered charity in Nigeria with registration number RC 29366
Sickle Cell Patient Health Promotion Centre
WE AIM:
-To mobilise
pharmaceutical care
for sickle cell patients.
-To educate parents on
sickle cell patients Nursing
ethics
-To mobilise financial support for the treatment of sickle cell patients.
-To mobilise
pharmaceutical care
for sickle cell patients.
-To educate parents on
sickle cell patients Nursing
ethics
-To mobilise financial support for the treatment of sickle cell patients.
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Sickle Cell Patient Health Promotion Centre
Motto: "Service To The Needy"
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ABOUT US
The Sickle Cell Patient Health Promotion Centre (SCPHPC) which evolved out of the desire to assist the less privileged sickle cell patients in the community. At the initial stage, the SCPHPC was rendering assistance informally.
The main focus of the SCPHPC is to provide medical and pharmaceutical support to the poor and needy sickle cell patients in the locality.
The main focus of the SCPHPC is to provide medical and pharmaceutical support to the poor and needy sickle cell patients in the locality.
Aims and Objectives
The following are the main aims and objectives of the SCPHPC:
The following are the main aims and objectives of the SCPHPC:
| 1. | To mobilize pharmaceutical care and support for sickle cell patients ; |
| 2. | To create awareness and educate the public on the causes and effects of sickle cell anaemia through counseling, seminars, workshops, publications etc; |
| 3. | To mobilize and coordinate financial support for the treatment of sickle cell patients; |
| 4. | To establish, run and manage a specialist hospital for the treatment, control and management of sickle cell anaemia and related ailments; and |
| 5. | To collaborate with other organizations towards addressing the aforementioned. |
Scope of Activities
With a view to achieving the aims and objectives outlined above, the SCPHPC has been operating in two broad ways:
With a view to achieving the aims and objectives outlined above, the SCPHPC has been operating in two broad ways:
| 1. | Weekly clinics; and |
| 2. | Mobile clinics; |
Weekly Clinics
The SCPHPC organizes Weekly Clinics in which registered patients are grouped into eight (8), each group is given a day once a month for attending the clinic. Mondays and Wednesdays have been set aside as clinic days.
Health talks, counseling, tests for the newly enlisted patients and referrals (as the case may be) are part of the Weekly activities of the SCPHPC. Patients are given routine/supportive drugs which will take them to their next clinic day.
The SCPHPC organizes Weekly Clinics in which registered patients are grouped into eight (8), each group is given a day once a month for attending the clinic. Mondays and Wednesdays have been set aside as clinic days.
Health talks, counseling, tests for the newly enlisted patients and referrals (as the case may be) are part of the Weekly activities of the SCPHPC. Patients are given routine/supportive drugs which will take them to their next clinic day.
Mobile Clinics
Mobile clinic is organized once a month by the SCPHPC on a selected locality. This is always achieved through the collaboration and support from the traditional authorities of the selected area. Home and hospital visits to patients in critical and crises situation are being carried out during the mobile clinic days.
Mobile clinic is organized once a month by the SCPHPC on a selected locality. This is always achieved through the collaboration and support from the traditional authorities of the selected area. Home and hospital visits to patients in critical and crises situation are being carried out during the mobile clinic days.
Sources of Finance
The Sickle Cell Patient Health Promotion Centre’s sources of funds are as follows:
The Sickle Cell Patient Health Promotion Centre’s sources of funds are as follows:
| 1. | Contributions by members; |
| 2. | Donations, public collections and other lawful means of fund raising; and |
| 3. | Donations/Grants from Government, NGOs and Donor Agencies. |
Achievements
The SCPHPC has recorded numerous achievements since its inception in 2008. The following are some of the achievements:
The SCPHPC has recorded numerous achievements since its inception in 2008. The following are some of the achievements:
| 1. | Since its inception in 2008, the SCPHPC has successfully organized about five hundred weekly clinics, in which over one thousand five hundred patients have been benefiting; |
| 2. | The SCPHPC has secured registration with the Nigeria Youth Clubs/Associations and also incorporated with the Corporate Affairs Commission of the Federal Republic of Nigeria; |
| 3. | The SCPHPC has been included in the African Sickle Cell Club; |
| 4. | The SCPHPC has successfully conducted its first anniversary in February 2010; |
| 5. | The SCPHPC has employed the services of Consultants who have been advising and carrying out technical and specialist services; |
| 6. | The SCPHPC successfully linked up and cooperated with government and other sickle cell organizations across the country for the purpose of promoting awareness and education on sickle cell anemia; |
| 7. | The SCPHPC commenced the publication of its quarterly Magazine in January 2010; |
| 8. | The SCPHPC has conducted a one-day capacity development workshop for its staff and volunteers of the Centre; |
| 9. | The SCPHPC identified and supported about thirty families seriously affected by sickle cell disease; |
| 10. | The SCPHPC has undertaken a complete restructuring of its activities, programs, organs and processes in order to position it to be able to face the current and future challenges in the area of health care services; and |
| 11. | The SCPHPC has organised and successfully conducted a rally in Kaduna and celebrated the World Sickle Cell Day on the 19th June, 2010. |
Constraints of the SCPHPC
The major constraint of the SCPHPC had been the dearth of funds. The Centre had been struggling to run and execute its activities. The major source of revenue for the activities of the Centre has been through donations from individuals and other institutions, which at present; resources are not forthcoming due to economic factors and as the economy did not favour many including our sponsors.
The major constraint of the SCPHPC had been the dearth of funds. The Centre had been struggling to run and execute its activities. The major source of revenue for the activities of the Centre has been through donations from individuals and other institutions, which at present; resources are not forthcoming due to economic factors and as the economy did not favour many including our sponsors.
The Executive Committee
This is the body responsible for the implementation of all SCPHPC’s activities and programs. It serves as the Secretariat of the Board of Trustees of the Centre. The following constitute membership of the Executive Committee and it meets once every month:
This is the body responsible for the implementation of all SCPHPC’s activities and programs. It serves as the Secretariat of the Board of Trustees of the Centre. The following constitute membership of the Executive Committee and it meets once every month:
| 1. | The Chairperson; |
| 2. | The Vice Chairperson; |
| 3. | The Secretary General; |
| 4. | The Financial Secretary; |
| 5. | The Internal Auditor; |
| 6. | Project Coordinator; |
| 7. | Legal Advisor; |
| 8. | Public Relations Officer; and |
| 9. | Two other selected members. |
Composite Structure of the Forum
The highest decision making arm of the SCPHPC is the Board of Trustees. This presently consists of ten (10) members. The Executive Committee of the SCPHPC implements decisions made by the Board of Trustees. On an advisory capacity, the SCPHPC also maintains a three (3) member Committee of Patrons for guidance and advice.
The names of members of the different arms of the SCPHPC are highlighted as follows:
Members of the Board of Trustees
The highest decision making arm of the SCPHPC is the Board of Trustees. This presently consists of ten (10) members. The Executive Committee of the SCPHPC implements decisions made by the Board of Trustees. On an advisory capacity, the SCPHPC also maintains a three (3) member Committee of Patrons for guidance and advice.
The names of members of the different arms of the SCPHPC are highlighted as follows:
Members of the Board of Trustees
| 1. | Alhaji Isa Katsina CON |
| 2. | Alhaji Magaji Inuwa |
| 3. | Alhaji Ibrahim Doro |
| 4. | Alhaji Kabiru Yahaya |
| 5. | Alhaji Umaru Yusuf |
| 6. | Haj. Badiya Magaji Inuwa |
| 7. | Haj. Amina Yahaya Gusau |
| 8. | Haj. Rabi Coomassie |
| 9. | Haj. Binta Shehu Yar'Adua |
| 10. | Haj. Binta Ladan Ayi |
Committee of Patrons
| 1. | His Royal Highness, The Emir of Katsina,Alhaji Abdulmu’min Kabir Usman |
| 2. | Alhaji Ahmed Maiyaki |
| 3. | Hajiya A’isha Aliko Mohammed |
Members of the Executive Committee
| 1. | Hajiya Badiya Magaji Inuwa - Chairperson |
| 2. | Hajiya Hajara Usman - Vice Chairperson |
| 3. | Hajiya Binta Ladan - Secretary General |
| 4. | Hajiya Kilishi Yari - Assistant Secretary General |
| 5. | Hajiya Binta Bello Mashi - Financial Secretary |
| 6. | Hajiya Mariya Abdullahi - Internal Auditor |
| 7. | Brr. Nuru Muhammad - Legal Advisor |
| 8. | Mal. Sani Adamu - Project Coordinator |
| 9. | Mr. Femi Mustapha Oyelola - Public Relations Officer |
| 10. | Two other selected members |
Organogram of the SCPHPC
B.O.T
EXECUTIVE COMMITTEE
PATRONS
CONSULTANTS
LEGAL ADVISORS
PROJECT OFFICER
LINE STAFF
VOLUNTEERS
FIN. & ADMIN OFFICERS
LINE STAFF
LINE STAFF
Future Plans
The Sickle Cell Patient Health Promotion Centre has the following future programs:
The Sickle Cell Patient Health Promotion Centre has the following future programs:
| 1. | To expand its activities to cover other towns and cities within Northern Nigeria; |
| 2. | To expand means of sending awareness messages through Radio, TV, Newspapers, etc; |
| 3. | To establish and manage its own Specialist Hospitals for the treatment, management and control of the sickle cell anaemia; and |
| 4. | To secure a land and construct its permanent Secretariat. |